• Xuemei Chen, Yanan He, Xianmei Meng, and Lanshu Zhou.
• 1 Clinical Nursing Department, School of Nursing, Second Military Medical University, Shanghai, China.
• Clin Rehabil. 2017 Sep 1; 31 (9): 1257-1266.

ObjectivesTo describe how first-stroke survivors perceive their participation and the problems with such participation in life and to determine the factors associated with perceived participation at three months after hospital discharge.DesignA cross-sectional study.SettingPatients were recruited from a tertiary hospital in Shanghai, China and they were followed up in their homes.SubjectsTwo hundred and fifty-seven first-stroke survivors discharged for three months participated in this study.MeasuresThe Chinese version of the Impact on Participation and Autonomy questionnaire, Barthel Index, Chinese Stroke Scale, Hospital Anxiety and Depression Scale and Social Support Rating Scale.ResultsOne hundred thirty-four (52.1%) and 147 (57.2%) participants perceived their participation as poor to very poor in the domains of family role and autonomy outdoors, respectively. Conversely, 208 (80.9%) and 228 (88.7%) participants perceived their participation to be fair to good in the domains of social relations and autonomy indoors, respectively. The ability to perform activities of daily life was the strongest correlate of participation in the domains of autonomy indoors, family role, and autonomy outdoors, whereas anxiety was the strongest correlate of participation in the domain of social relations.ConclusionsActivities of daily living were significantly associated with perceived participation in almost all domains. In contrast, anxiety was an important factor in predicting participation in the domain of social relations. These findings suggest the need to explore different strategies of promoting participation for each domain.

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