• J Pain Symptom Manage · Jan 2020

    Case Reports

    Illness as transformative experience: Implications of philosophy for advance care planning.

    • Barnaby Hole and Lucy Selman.
    • Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK. Electronic address: Barnaby.hole@bristol.ac.uk.
    • J Pain Symptom Manage. 2020 Jan 1; 59 (1): 172-177.

    AbstractAdvance care planning has been shown to improve patient outcomes and is recommended as part of routine care for people with a life-limiting illness. Nevertheless, developing an advance care plan can be complex and challenging for both patients and family members, and the clinicians who support them. One complexity is that illness and its treatments often cannot be deeply understood without lived experience. In this paper, we explore this idea, highlighting how lived experience can bring about unpredictable changes in an individual's values and preferences. We examine the implications of such "transformative experiences" for advance care planning, using the hypothetical case study of Jean, an older person with advanced kidney disease. Finally, we consider consequences for clinical practice and how an understanding of transformative experience might enhance current approaches to advance care planning.Copyright © 2019 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

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