• Palliative medicine · Apr 2019

    A systematic review and critical appraisal of quality indicators to assess optimal palliative care for older people with dementia.

    • Sarah Amador, Elizabeth L Sampson, Claire Goodman, Louise Robinson, and SEED Research Team.
    • 1 Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK.
    • Palliat Med. 2019 Apr 1; 33 (4): 415429415-429.

    BackgroundA challenge for commissioners and providers of end-of-life care in dementia is to translate recommendations for good or effective care into quality indicators that inform service development and evaluation.AimTo identify and critically evaluate quality indicators for end-of-life care in dementia.ResultsWe found 8657 references, after de-duplication. In all, 19 publications describing 10 new and 3 updated sets of indicators were included in this review. Ultimately, 246 individual indicators were identified as being relevant to dementia end-of-life care and mapped against EAPC guidelines.ConclusionsWe systematically derived and assessed a set of quality indicators using a robust framework that provides clear definitions of aspects of palliative care, which are dementia specific, and strengthens the theoretical underpinning of new complex interventions in end-of-life care in dementia.

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