• J Palliat Med · Apr 2019

    Review

    Advance Care Planning Outcomes in African Americans: An Empirical Look at the Trust Variable.

    • Esther R Laury, Meredith MacKenzie-Greenle, and Salimah Meghani.
    • 2 M. Louise Fitzpatrick College of Nursing, Villanova University , Villanova, Pennsylvania.
    • J Palliat Med. 2019 Apr 1; 22 (4): 442451442-451.

    ContextRacial disparities in rates of hospice use, a marker of quality of end-of-life (EOL) care, have been a long-standing problem. Although distrust has been cited as a main reason for the preference of intensive EOL care among African Americans, the role of trust has not been closely analyzed in predicting EOL care in the context of advance care planning (ACP) outcomes.ObjectivesThe goal of this review was to empirically examine the role of trust in ACP outcomes.MethodsFor this systematic review, we utilized methods adapted from the GRADE process developed by the Cochrane Collaboration. The research question guiding this review was "What is the quantitative influence of trust in the health care system or health care providers on the ACP process for African Americans?" We searched Medline, Embase, and Web of Science for articles published between 1975 and 2016.ResultsWe identified nine quantitative studies that measured and evaluated trust as a predictor or correlate of ACP preferences. Of the studies, eight were observational and one was a pre-post-test study. Three studies were designated as low quality, and six studies were of moderate quality.ConclusionDistrust has been cited as a central reason for African Americans' tendency to choose life-sustaining treatments over comfort-focused care; however, our findings do not support this hypothesis. The majority of studies found no significant differences in trust between African Americans and their White counterparts. Further, we found that trust was not associated with ACP outcomes in the majority of studies.

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