• Carine Poppe, Sandra Akum, Geert Crombez, Xavier Rogiers, and Eric Hoste.
• Department of Internal Medicine and Pediatrics, Ghent University, Belgium. Electronic address: Carine.Poppe@ugent.be.
• J Crit Care. 2019 Oct 1; 53: 198-206.

PurposeA multi-centric study in Intensive Care units (ICU) and Emergency departments (ED) was designed to evaluate whether the provided communication and emotional support to the family in the context of organ donation met the international recommendations of the European Donor Hospital Education Program (EDHEP).Materials And MethodsUsing a participatory approach and focus groups, a questionnaire was constructed: Donor Family questionnaire (DFQ). The questionnaire was distributed to 203 families. The data were analysed on item level.ResultsSixty-four families participated, and 89% considered the communication as tactful. Only 24.1% had a separate conversation about passing and donation, which is the recommendation. 88.5% reported they could count on emotional support in the first phase on the ICU/ED. This dropped during the parting phase and the aftercare. The physician is perceived as the most active caregiver in the emotional support during the entire procedure.ConclusionsThe DFQ is a useful instrument to evaluate the donor procedure. The physician is important in the first phases of the donor procedure for the medical explanation. Other disciplines could be more involved in the following phases to assure enough emotional support, but this issue requires further exploration.Copyright © 2019 Elsevier Inc. All rights reserved.

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