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J Pain Symptom Manage · Nov 2019
Translation and validation of the 10-item FAMCARE scale to assess satisfaction of family caregivers with care given to cancer patients.
- Shirlyn Hui-Shan Neo, Yang Grace Mei-Juan GM Division of Supportive and Palliative Care, National Cancer Centre, Singapore; Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore., Ravindran Kanesvaran, and Yin Bun Cheung.
- Division of Supportive and Palliative Care, National Cancer Centre, Singapore. Electronic address: shirlyn.neo.h.s@singhealth.com.sg.
- J Pain Symptom Manage. 2019 Nov 1; 58 (5): 878-885.e2.
ContextFamily satisfaction with care is an important quality indicator in palliative care.ObjectivesThis study aimed to translate and validate the 10-item Family Satisfaction with End-of-Life Care (FAMCARE) tool.MethodsFamily caregivers of patients with advanced cancer were recruited. FAMCARE was translated from English to Chinese using a forward and backward translation process. Chinese-speaking caregivers were interviewed with the preliminary Chinese FAMCARE, and phrasing was edited to ensure clarity of the items. Subsequently, a baseline and follow-up survey in English and the finalized Chinese version were performed to assess psychometric properties. Cronbach's alpha (α) and intraclass correlation coefficient were used for internal consistency and test-retest reliability, respectively. Validity was assessed with Spearman's correlation coefficient (r). The Comprehensive Needs Assessment Tool-Caregiver (CNAT-C) and a one-item assessment by caregivers regarding "good-care" acted as a validity criterion. Pooled analysis of both languages and language-specific analyses were performed.ResultsThere were 259 participants; 134 and 125 participants filled in the English and Chinese versions, respectively. Pooled analysis showed that the intraclass correlation coefficient of FAMCARE was 0.95; α was 0.91. There was a moderate positive correlation between the total FAMCARE scores and "good-care" (r = 0.54) and a moderate negative correlation between the total FAMCARE score and the CNAT-C "Healthcare Staff" domain (r = 0.41). There was a weak negative correlation between the total FAMCARE score and the CNAT-C domain of "family and social support" (r = -0.13). Language-specific analyses revealed similar results regarding FAMCARE's psychometric properties.ConclusionFAMCARE showed good reliability and validity.Copyright © 2019 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.
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