• Iris F Groeneveld, Henk J Arwert, Paulien H Goossens, and Vliet Vlieland Thea P M TPM Sophia Rehabilitation, Den Haag, The Netherlands; Rijnlands Rehabilitation Center, Leiden, The Netherlands; Leiden University Medical Center, .
• Sophia Rehabilitation, Den Haag, The Netherlands; Rijnlands Rehabilitation Center, Leiden, The Netherlands; Leiden University Medical Center, Leiden, The Netherlands. Electronic address: igo@rrc.nl.
• J Stroke Cerebrovasc Dis. 2018 Jan 1; 27 (1): 267-275.

BackgroundUnmet needs are common after stroke. We aimed to translate the 22-item Longer-term Unmet Needs after Stroke (LUNS) Questionnaire and validate it in a Dutch stroke population.MethodsThe LUNS was translated and cross-culturally adapted according to international guidelines. After field testing, the Dutch version was administered twice to a hospital-based cohort 5-8 years after stroke. Participants were also asked to complete the Frenchay Activity Index (FAI) and Short Form (SF)-12. To explore acceptability, the response and completion rates as well as number of missing items were computed. For concurrent validity, the differences in health status (FAI, SF-12) between groups who did and did not report an unmet need were calculated per item. To determine the 14-day test-retest reliability, the percentage of agreement between the first and the second administration was calculated for each item.ResultsSeventy-eight of 145 patients (53.8%) returned the initial Dutch LUNS (average age 68.3 [standard deviation 14.0] years, 59.0% male); 66 of these patients (84.6%) fully completed it. Of all items, 3.3% were missing. Among completers, the median number of unmet needs was 3.5 (2.0-5.0; 1.0-14.0). For 15 of 22 items, there was a significant association with the FAI or SF-12 Mental or Physical Component Summary scales. The percentage of agreement ranged from 69.8% to 98.1% per item.ConclusionsAmong the 53.8% who completed the survey, the LUNS was concluded to be feasible, reliable, and valid; two-thirds of its items were related to activities and quality of life. Its usefulness and acceptability when administered in routine practice require further study.Copyright © 2018 National Stroke Association. Published by Elsevier Inc. All rights reserved.

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