• Abigail J Rolbiecki, Michelle Teti, Benjamin Crenshaw, Joseph W LeMaster, Jeff Ordway, and David R Mehr.
• Department of Family and Community Medicine.
• Pain Med. 2019 Jun 1; 20 (6): 1202-1211.

ObjectiveTo understand how patients' use of photo-elicitation and online social networks (Facebook) enhances their understanding of what it means to live with pain.DesignQualitative substudy of the intervention arm of a randomized trial.Setting/SubjectsPrimary care patients living with pain drawn from nine family practices with at least two pain visits in the last six months.MethodsThe private Facebook group was co-facilitated by a moderator and a patient-investigator who lives with chronic pain. Patients were asked to share photos that elicit their lived experience with chronic pain, and facilitators guided participants in ongoing discussion about these photos, and thus the life with pain. Facebook discussions were analyzed via Dedoose (a qualitative analysis software) using thematic analysis.ResultsDiscussions of photos elicited three overarching themes regarding patients' lived experience with chronic pain: 1) patients' redefined pain identity; 2) pain interference with enjoyment of life and activities; and 3) patients' diminished ability to function.ConclusionsPhoto-elicitation is an innovative way to shed light on patients' lived experience with chronic pain. Despite some technical challenges, Facebook support groups utilizing photo-elicitation can provide a readily available platform that can facilitate interchange of patient experiences and might help patients communicate with their providers.© 2018 American Academy of Pain Medicine. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

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