• Hanne Irene Jensen, Lois Downey, Matty Koopmans, Curtis J Randall JR Pulmonary, Critical Care and Sleep Medicine, Harborview Medical Center, University of Washington, 325 Ninth Avenue, Box 359762, Seattle, WA 98104, USA, Ruth A Engelberg, and Rik T Gerritsen.
• Institute of Regional Health Research, University of Southern Denmark, J.B.Winsløwsvej 19, 5000 Odense, Denmark; Department of Anaesthesiology and Intensive Care, Vejle and Middelfart Hospitals, Beriderbakken 4, 7100 Vejle, Denmark. Electronic address: Hanne.irene.jensen@rsyd.dk.
• J Crit Care. 2020 Feb 1; 55: 108-115.

PurposeTo examine heterogeneity of quality-of-care ratings within families and to examine possible predictors of concordance.Materials And MethodsWe examined two aspects of agreement within families: response similarity and the amount of exact concordance in responses in a cohort of Danish ICU family members participating in a questionnaire survey (the European Quality Questionnaire: euroQ2).ResultsTwo hundred seventy-four family respondents representing 122 patients were included in the study. Identical ratings between family members occurred in 28%-59% of families, depending upon the specific survey item. In a smaller sample of 28 families whose patients died, between 39% and 86% gave identical responses to items rating end-of-life care. There was more response variance within than between families, yielding low estimates of intrafamily correlation. Statistics correcting for chance agreement also suggested modest within-family agreement.ConclusionsThe finding that variance is higher within than between families suggests the value of including multiple participants within a family in order to capture varying points of view.Copyright © 2019 Elsevier Inc. All rights reserved.

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