• J Pediatr Psychol · Aug 2012

    Responsiveness of the PedsQL to pain-related changes in health-related quality of life in pediatric sickle cell disease.

    • Alyssa M Schlenz, Jeffrey Schatz, Catherine B McClellan, and Carla W Roberts.
    • Department of Psychology, University of South Carolina, Columbia, SC 29208, USA. schlenz@email.sc.edu
    • J Pediatr Psychol. 2012 Aug 1; 37 (7): 798-807.

    ObjectiveTo determine if caregiver report of the pediatric quality of life inventory (PedsQL) is responsive to changes in health-related quality of life (HRQL) associated with pain episodes in pediatric sickle cell disease (SCD).Methods81 caregivers of children ages 2-19 years with SCD completed the PedsQL as part of routine psychosocial screenings at 2 time points, ranging from 6 to 18 months apart. Frequency of SCD-related pain episodes between time points was assessed using medical chart review.ResultsThe frequency of pain episodes between time points was a significant predictor of decreases in physical, psychosocial, and total HRQL, even after controlling for time interval, demographic, and medical variables.ConclusionsThe caregiver report of the PedsQL appears to be a useful tool for capturing changes in HRQL over time associated with pain episodes in SCD.

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