• Marianne Krogsgaard, Torquil Watt, Anne K Danielsen, Tobias Wirenfeldt Klausen, Anders Vinther, Ismail Gögenur, and Thordis Thomsen.
• Department of Surgical Gastroenterology, Clinic C, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.
• Ann. Surg. 2021 Dec 1; 274 (6): e1085-e1092.

ObjectiveTo investigate stoma specific and generic HRQoL in patients with and without a parastomal bulge.BackgroundMost patients have to live with their stoma complicated by a parastomal bulge. How this affects quality of life remains unclear.MethodsPatients in the Danish Stoma Database completed the Short-form 36 health survey and the stoma-QOL questionnaire. Linear regression analysis, adjusted for potential confounding factors, provided mean and mean score differences and 95% confidence intervals for each HRQoL scale and item. Cohens d provided estimates of effect size.ResultsA total of 1265 patients (65%) completed the questionnaire 4.4 (interquartile range 3.1-6.0) years after stoma surgery. Of these, 693 (55%) patients with a parastomal bulge had significantly impaired (P < 0.01) HRQoL across all stoma specific and generic health domains compared to patients without a parastomal bulge. In patients with a benign diagnosis or an ileostomy, a parastomal bulge impacted significantly on Social Functioning and Mental Health resulting in a worse Mental Component Summary. A large bulge >10 cm impaired HRQoL (P < 0.01) across all stoma specific and generic domains. The impact on HRQoL was independent of time with the bulge.ConclusionsA novel finding in this large, unselected sample from high-quality regional registries was that parastomal bulging was associated with substantial and sustained impairment of HRQoL.Copyright © 2019 Wolters Kluwer Health, Inc. All rights reserved.

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