• J Law Med Ethics · Jan 2006

    The limits of disclosure: what research subjects want to know about investigator financial interests.

    • Christine Grady, Elizabeth Horstmann, Jeffrey S Sussman, and Sara Chandros Hull.
    • Section on Human Subjects Research, Department ofClinical Bioethics, Clinical Center, NIH, USA.
    • J Law Med Ethics. 2006 Jan 1; 34 (3): 592-9, 481.

    AbstractResearch participants' views about investigator financial interests were explored. Reactions ranged from concern to acceptance, indifference, and even encouragement. Although most wanted such information, some said it did not matter, was private, or was burdensome, and other factors were more important to research decisions. Very few said it would affect their research decisions, and many assumed that institutions managed potential conflicts of interest. Although disclosure of investigator financial interest information to research participants is often recommended, its usefulness is limited, especially when participation is desired because of illness.

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