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J Pain Symptom Manage · Aug 2020
Challenges in the Provision of End-of-life and Palliative Care to Ethnic Nepali Refugees.
- Salim N Najjar and Fern R Hauck.
- University of Virginia School of Medicine, Charlottesville, Virginia, USA. Electronic address: najjarsalim@gmail.com.
- J Pain Symptom Manage. 2020 Aug 1; 60 (2): 476-486.
AbstractAfter over a decade of resettlement of ethnic Nepali refugees in the U.S., a significant population of seriously ill refugees will require palliative care and hospice care. The refugee experience and culturally specific factors affect the end-of-life care of this population. Challenges in the end-of-life care of Nepali refugees include challenges related to social and health inequities, such as significant chronic respiratory disease burden; lack of protocols for deferral of illness disclosure; lack of support for group decision making; unfamiliarity with spiritual, religious, and traditional health practices; and difficulty with cross-cultural communication. Culturally competent care of ethnic Nepali refugees can be accomplished through respectful exploration of patients' and families' preferences regarding the challenges identified. This article presents recommendations that can guide primary and specialist palliative care for this population.Copyright © 2020 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.
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