• Palliative medicine · Jan 2013

    Review

    Why do we want the right to die? A systematic review of the international literature on the views of patients, carers and the public on assisted dying.

    • Maggie Hendry, Diana Pasterfield, Ruth Lewis, Ben Carter, Daniel Hodgson, and Clare Wilkinson.
    • North Wales Centre for Primary Care Research, Bangor University, Wrexham Technology Park, Wrexham, UK. m.hendry@bangor.ac.uk
    • Palliat Med. 2013 Jan 1; 27 (1): 13-26.

    BackgroundAssisted dying is legal in four European countries and three American states. Elsewhere, particularly in more affluent or mainly Protestant countries, it remains controversial. Dominant headlines feature professional (medical, legal, religious) arguments versus celebrity campaigners; ordinary people are less clearly represented.AimTo synthesise the international evidence of people's views and attitudes towards assisted dying in order to inform current debate about this controversial issue.DesignSystematic review and mixed method synthesis of qualitative and survey data.Data SourcesEleven electronic databases from inception to October 2011; bibliographies of included studies.Review MethodsTwo reviewers independently screened papers and appraised quality. Qualitative results were extracted verbatim; survey results were summarised in a table. Qualitative data were synthesised using framework methods and survey results integrated where they supported, contrasted or added to the themes identified.ResultsSixteen qualitative studies and 94 surveys were included; many participants considered the immediate relevance of assisted dying for them. Themes related to poor quality of life, a good quality of death, potential abuse of assisted dying and the importance of individual stance. People valued autonomy in death as much as in life. Attitudes were diverse, complex and related to definitions of unbearable suffering including physical, psycho-social and existential factors and were consistent regardless of social, economic, legal and health-care contexts.ConclusionOur review sheds light on ordinary people's perspectives about assisted dying, when they are ill or disabled. Unbearable suffering is a key construct, and common factors are revealed that lead people to ask for help to die. The consistency of international views indicates a mandate for legislative and medical systems worldwide to listen and understand this.

      Pubmed     Full text   Copy Citation     Plaintext  

      Add institutional full text...

    Notes

     
    Knowledge, pearl, summary or comment to share?
    300 characters remaining
    help        
    You can also include formatting, links, images and footnotes in your notes
    • Simple formatting can be added to notes, such as *italics*, _underline_ or **bold**.
    • Superscript can be denoted by <sup>text</sup> and subscript <sub>text</sub>.
    • Numbered or bulleted lists can be created using either numbered lines 1. 2. 3., hyphens - or asterisks *.
    • Links can be included with: [my link to pubmed](http://pubmed.com)
    • Images can be included with: ![alt text](https://bestmedicaljournal.com/study_graph.jpg "Image Title Text")
    • For footnotes use [^1](This is a footnote.) inline.
    • Or use an inline reference [^1] to refer to a longer footnote elseweher in the document [^1]: This is a long footnote..

    hide…