• Palliative medicine · May 2015

    Review

    Patients' preferences in palliative care: A systematic mixed studies review.

    • Tuva Sandsdalen, Reidun Hov, Sevald Høye, Ingrid Rystedt, and Bodil Wilde-Larsson.
    • Department of Nursing and Mental Health, Faculty of Public Health, Hedmark University College, Elverum, Norway Discipline of Nursing Science, Department of Health Science, Faculty of Health, Science and Technology, Karlstad University, Karlstad, Sweden Tuva.Sandsdalen@hihm.no.
    • Palliat Med. 2015 May 1; 29 (5): 399-419.

    BackgroundIt is necessary to develop palliative care to meet existing and future needs of patients and their families. It is important to include knowledge of patient preferences when developing high-quality palliative care services. Previous reviews have focused on patient preferences with regard to specific components of palliative care. There is a need to review research on patient's combined preferences for all elements that constitute palliative care.AimThe aim of this study is to identify preferences for palliative care among patients in the palliative phase of their illness, by synthesizing existing research.Data SourcesStudies were retrieved by searching databases - the Cochrane Library, Medline, CINAHL, PsycINFO, Scopus and Sociological Abstracts - from 1946 to 2014, and by hand searching references in the studies included.DesignA systematic mixed studies review was conducted. Two reviewers independently selected studies for inclusion and extracted data according to the eligibility criteria. Data were synthesized using integrative thematic analysis.ResultsThe 13 qualitative and 10 quantitative studies identified included participants with different illnesses in various settings. Four themes emerged representing patient preferences for care. The theme 'Living a meaningful life' illustrated what patients strived for. The opportunity to focus on living required the presence of 'Responsive healthcare personnel', a 'Responsive care environment' and 'Responsiveness in the organization of palliative care'.ConclusionThe four themes may be useful for guiding clinical practice and measurements of quality, with the overall goal of meeting future needs and improving quality in palliative care services to suit patients' preferences.© The Author(s) 2015.

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