• Mirjam C van Soest-Poortvliet, Jenny T van der Steen, Henrica C W de Vet, Cees M P M Hertogh, Luc Deliens, and Bregje D Onwuteaka-Philipsen.
• Department of General Practice & Elderly Care Medicine, EMGO Institute for Health and Care Research, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands.
• Palliat Med. 2015 Jun 1;29(6):538-46.

BackgroundMany people with dementia die in a nursing home. A comfort care goal may be beneficial. Little research has examined the relationship between care goals and outcome.AimTo investigate whether family satisfaction with end-of-life care and quality of dying is associated with whether or not dementia patients have a comfort goal shortly after admission.Design And SettingProspective data collection from 28 long-term care facilities (the Dutch End of Life in Dementia study). We included 148 patients who died after prospective follow-up. Main outcomes were family satisfaction (End-of-Life in Dementia-Satisfaction with Care scale; range: 10-40) and quality of dying (End-of-Life in Dementia-Comfort Assessment in Dying; range: 14-42). We performed generalized estimating equations regression analyses to analyze whether these outcomes are associated with a comfort goal established shortly after admission compared with another or no care goal as reported by the physician.ResultsFamilies of patients were more satisfied with end-of-life care when a comfort goal was established shortly after admission. We found this pattern only for patients who died within 6 months of admission (adjusted b: 4.5; confidence interval: 2.8, 6.3 vs -1.2; confidence interval: -3.0, 0.6 for longer stay). For quality of dying, no such association was found.ConclusionWe found that family satisfaction with care is related to a comfort care goal shortly after admission, but quality of dying did not. Establishing a comfort goal at an early stage may be important to the family. Advance care planning interventions should be studied for their effects on patient and family outcome.© The Author(s) 2015.

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