Journal of social work in end-of-life & palliative care
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J Soc Work End Life Palliat Care · Apr 2019
Family Caregivers' Experiences with Dying and Bereavement of Individuals with Motor Neuron Disease in India.
Motor neuron disease (MND) is a progressive neurodegenerative disease. Ideal management plan in MND includes palliative care initiated from the time of diagnosis. At present, most of the neurodegenerative conditions are cared for at home. ⋯ Major themes derived from the interviews were: (1) Transition from person to patient, (2) support, (3) death, and (4) impact on the caregivers. Mapping of themes identified "Support received during advanced stages" as the central theme influencing all other themes. The need for a care manager seems evident and is a role that can be effectively fulfilled by the care teams' social workers.