Oncology nursing forum
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Oncology nursing forum · Jun 1993
The challenging experience of palliative care support-team nursing.
The purpose of this study was to document the experience of palliative care nursing as a part of a multidisciplinary support team. Data were obtained from two palliative care support-team nurses. Each nurse privately recorded on audiotape any reflections about particularly meaningful aspects of her daily work experience; in-depth interviews with the two nurses together also were used for data collection. ⋯ This effort emerged as being vital to the nurses preserving their own integrity, both personally and professionally. The findings of this study may help all professionals who provide palliative care to better understand the nature of their work, themselves, and each other. Strategies to promote understanding may help to reduce the amount of time and energy that professionals must dedicate to preservation of integrity.
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Oncology nursing forum · Jan 1993
The effect of preparation for lumbar puncture on children undergoing chemotherapy.
At the University Hospital in Lund, Sweden, a preparation program was developed for children undergoing lumbar punctures (LPs) during chemotherapy for leukemia or lymphoma. Subsequently, a study was initiated to determine whether a preparation program for children prior to treatment would reduce their anxiety and improve their cooperation. This study also was undertaken to examine whether reinforcing the preparation information prior to each LP would be beneficial. ⋯ Based on these ratings, the groups were analyzed to determine if within-group differences existed from one treatment to the next and to determine if between-group differences existed at the various times of treatment. Few statistically significant differences were found, but the results indicate that the children in the most informed group exhibited sustained reductions in their perceptions of pain. This may signify that reinforcing the preparation information before each of the LPs enabled these children to cope with the pain more effectively.
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Although fatigue is a frequent complaint of patients undergoing cancer treatment, specific self-care activities are seldom addressed in patient education materials. To fill this void, a patient education tool was developed, with a special emphasis on the management of fatigue. Testing is under way with a large population of patients with cancer.
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This study investigated the reading level estimates of cancer clinical trial consent forms from actively accruing studies at the Medicine Branch and the Clinical Pharmacology Branch of the National Cancer Institute. Forty-four consent forms were analyzed using the SMOG formula. ⋯ The usefulness of consent forms could be improved significantly by using readability formulas, applying rewriting techniques, and being aware of subjects' comprehension levels. This paper suggests a number of strategies that nurses can use to enhance comprehension of the information contained in informed consent documents.
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Although stresses associated with family caregiving during illness have been well-documented, little attention has been focused on how families cope with hospice home care of a relative with advanced cancer. A longitudinal, qualitative study examined the experiences of hospice caregiving families. This article focuses on coping strategies identified by hospice families caring for their dying relative at home. ⋯ Acceptance and rationalization helped families to deal with changes in a relative's mental status. Social support was used with all three areas of stress. Identifying effective coping strategies that families are using directs the development, testing, and implementation of nursing interventions that enhance coping of hospice caregiving families.