International journal of pediatric otorhinolaryngology
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Int. J. Pediatr. Otorhinolaryngol. · Mar 2007
Evaluation of the Parental Perspective instrument for pediatric cochlear implantation to arrive at a short version.
Evaluation of the well-known and widely used Parental Perspectives questionnaire (PP) by means of statistical analysis and exploring the possibility to develop a short version, as the instrument is often regarded as being rather lengthy with 74 questions. ⋯ The Parental Perspectives instrument (PP) is an important tool to assess the impact of cochlear implantation of a child for the quality of life for the family and the child itself. This statistical investigation showed a possible option for development of a short form usable in prospective follow-up studies.
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Int. J. Pediatr. Otorhinolaryngol. · Mar 2007
The management of general and disease specific ENT problems in children with Epidermolysis Bullosa--a retrospective case note review.
Epidermolysis Bullosa encompasses a group of inherited disorders characterized by excessive susceptibility of the skin and mucosa to separate from underlying tissues following mechanical trauma. Information in the literature and guidance on the management of Ear, Nose and Throat problems in such children is scarce. The aim of this study is to report the experience of an Ear, Nose and Throat department in a tertiary paediatric hospital linked to a national Epidermolysis Bullosa unit, describing how children have presented and the care that has been given including a theatre protocol aimed at reducing shearing forces. ⋯ Optimal management depends on the support of a multidisciplinary team, including otolaryngologists, pediatricians, dermatologists, anaesthetists, and specialist nurses. Adherence to a protocol for theatre management can help avoid intraoperative complications.