Journal of pain and symptom management
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J Pain Symptom Manage · Nov 2012
Randomized Controlled TrialSurvey burden for family members surveyed about end-of-life care in the intensive care unit.
Family surveys are an important source of information about quality of end-of-life care in the intensive care unit (ICU). The burden associated with completing such surveys is not well studied. ⋯ Most families reported no to low burden. Family members who live with their loved one are particularly vulnerable to survey burden and those of older patients report less burden. The association between low quality-of-care ratings and survey burden suggests that the response bias in this type of research is toward overestimating quality of care.