Journal of pain and symptom management
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J Pain Symptom Manage · Apr 2017
Multicenter StudyImplementation and Impact of Patient Lay Navigator-led Advance Care Planning Conversations.
Advance care planning (ACP) improves alignment between patient preferences for life-sustaining treatment and care received at end of life (EOL). ⋯ A navigator-led ACP program was feasible and may be associated with lower rates of resource utilization near EOL.
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J Pain Symptom Manage · Apr 2017
Multicenter StudyCognitive Interview-based Validation of the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) in Adolescents with Cancer.
The National Cancer Institute created the Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) to allow direct input on symptomatic adverse events (AEs) from adult patients in oncology trials. ⋯ This study extends use of the adult PRO-CTCAE for adolescents as young as 16 years and proposes new questions for seven new symptomatic AEs and a parent-proxy version of PRO-CTCAE. Additional testing of the new questions and alternative language for more challenging PRO-CTCAE items is recommended in adults.
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J Pain Symptom Manage · Apr 2017
Multicenter StudyMeasuring Advance Care Planning: Optimizing the Advance Care Planning Engagement Survey.
A validated 82-item Advance Care Planning (ACP) Engagement Survey measures a broad range of behaviors. However, concise surveys are needed. ⋯ Shorter versions of the ACP Engagement Survey are valid, internally consistent, and able to detect change across a broad range of ACP behaviors for English and Spanish speakers. Shorter ACP surveys can efficiently measure broad ACP behaviors in research and clinical settings.