Journal of pain and symptom management
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J Pain Symptom Manage · Mar 2021
"Are they saying it how I'm saying it?" A Qualitative Study of Language Barriers and Disparities in Hospice Enrollment.
Language barriers contribute significantly to disparities in end-of-life (EOL) care. However, the mechanisms by which these barriers impact hospice care remains underexamined. ⋯ Language barriers present unique challenges in hospice care because of the nuance and compassion required for delicate goals of care and EOL conversations. Reducing disparities requires addressing each level of this multilayered barrier.
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J Pain Symptom Manage · Mar 2021
Italian Version of Cancer Dyspnea Scale: Cultural-Linguistic and Clinical Validation in Patients With Advanced Cancer Disease in Palliative Care Settings.
The Cancer Dyspnea Scale (CDS) is a self-reported multidimensional tool used for the assessment of dyspnea, a subjective experience of breathing discomfort, in patients with cancer. The scale describes dyspnea using three distinct factors: physical, psychological, and discomfort at rest. ⋯ The study findings supported the crosscultural validity of the CDS-IT. Its feasibility, internal consistency, and construct validity are satisfactory for clinical practice. The CDS-IT is available to health care professionals as a useful tool to assess dyspnea in patients with cancer.
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J Pain Symptom Manage · Mar 2021
Randomized Controlled TrialThe Effect of Aromatherapy Massage with Lavender and Citrus Aurantium Essential Oil on Quality of Life of Patients on Chronic Hemodialysis: A Parallel Randomized Clinical Trial Study.
Poor quality of life is a major problem in hemodialysis patients. ⋯ In this study, both aromatherapy massages have positive effects on the quality of life of hemodialysis patients. Therefore, nurses are advised to use these aromatherapy massages to improve the quality of life of hemodialysis patients.
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J Pain Symptom Manage · Mar 2021
CHARTING THE TERRITORY: END-OF-LIFE TRAJECTORIES FOR CHILDREN WITH COMPLEX NEUROLOGICAL, METABOLIC AND CHROMOSOMAL CONDITIONS.
For parents, family, or clinicians of children with rare life-threatening conditions, there is little information regarding likely symptoms, illness trajectory, and end-of-life care. ⋯ Although much emphasis on pediatric palliative care has been on supportive treatment and symptom management, when faced with a lack of sound understanding of a rare illness, the mode of care can often be reactive and based on critical needs. By developing greater knowledge of symptoms and illness trajectory, both management and care can be more responsive and anticipatory, thereby helping ease illness burden and suffering.
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J Pain Symptom Manage · Mar 2021
Observational StudyThe Impact of COVID-19 Surge on Clinical Palliative Care: A Descriptive Study from a New York Hospital System.
In spring 2020, New York experienced a surge of patients hospitalized with severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2 or COVID-19) disease, as part of a global pandemic. There are limited data on populations of COVID-19-infected patients seen by palliative care services. ⋯ During the initial surge of the COVID-19 pandemic in New York, palliative care services experienced a large surge of patients who tended to be healthier at baseline and more acutely ill at the time of admission than pre-COVID-19 palliative patients.