Journal of pain and symptom management
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J Pain Symptom Manage · Mar 2021
"Are they saying it how I'm saying it?" A Qualitative Study of Language Barriers and Disparities in Hospice Enrollment.
Language barriers contribute significantly to disparities in end-of-life (EOL) care. However, the mechanisms by which these barriers impact hospice care remains underexamined. ⋯ Language barriers present unique challenges in hospice care because of the nuance and compassion required for delicate goals of care and EOL conversations. Reducing disparities requires addressing each level of this multilayered barrier.
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J Pain Symptom Manage · Mar 2021
Italian Version of Cancer Dyspnea Scale: Cultural-Linguistic and Clinical Validation in Patients With Advanced Cancer Disease in Palliative Care Settings.
The Cancer Dyspnea Scale (CDS) is a self-reported multidimensional tool used for the assessment of dyspnea, a subjective experience of breathing discomfort, in patients with cancer. The scale describes dyspnea using three distinct factors: physical, psychological, and discomfort at rest. ⋯ The study findings supported the crosscultural validity of the CDS-IT. Its feasibility, internal consistency, and construct validity are satisfactory for clinical practice. The CDS-IT is available to health care professionals as a useful tool to assess dyspnea in patients with cancer.
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J Pain Symptom Manage · Mar 2021
ReviewPalliative care in the Greater China region: a systematic review of needs, models and outcomes.
There is rapidly increasing need for palliative care in Greater China because of rapidly aging populations. ⋯ Palliative care services within Greater China should pay more attention to management of nonmalignant disease and to integration into primary services. Policy support is key to establishing culturally appropriate person-centered services.
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J Pain Symptom Manage · Mar 2021
Emergency department use by Terminally Ill patients: a systematic review.
Terminally ill patients (TIP) frequently visit the emergency department (ED), but the prevalence of these visits is unclear. ⋯ Patients with terminal cancer frequently use the ED at the end of life, although use varies among patients and few studies have examined low-income countries or patients with nononcologic terminal illness. The global prevalence of TIP in the ED cannot be calculated from limited reports.
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J Pain Symptom Manage · Mar 2021
The #PalliativeCare conversation on Twitter: An analysis of trends, content and caregiver perspectives.
Palliative care is known to improve patients' quality of life, but oftentimes these conversations occur outside of the health-care setting. ⋯ The use of Twitter as a platform for palliative care conversations is growing rapidly. Twitter serves as a platform to facilitate #PalliativeCare conversation among patients, caregivers, physicians, and other healthcare providers.