Journal of pain and symptom management
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J Pain Symptom Manage · Jun 2021
Correlates of Mental Health after COVID-19 Bereavement in Mainland China.
Pioneering empirical studies show that people bereaved due to COVID-19 experience elevated acute grief, posttraumatic stress, anxiety, and depressive symptom levels, which relate to functional impairment. However, studies focused on Western samples and multivariate analyses of relations between potential risk factors and mental health in this population are lacking. ⋯ Many Chinese adults bereaved due to COVID-19 experience severe mental health problems. The recent loss of first-degree relatives, feeling traumatized by the loss, and having a close and/or conflictual relationship with the deceased may elevate risk for these mental health problems, which could require indicated psychological treatment.
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J Pain Symptom Manage · Jun 2021
Parental Perceptions of Hospital-Based Bereavement Support Following a Child's Death from Cancer: Room for Improvement.
The death of a child from cancer is a devastating event, placing bereaved parents at risk for both physical and psychosocial morbidities. Despite growing awareness of these outcomes and increased hospital-based support, bereaved parents continue to express a desire for additional assistance. ⋯ Bereaved parents request additional supportive services. Using the parents' perspective and recommendations, we outline options to augment support and provide a variety of supportive resources for bereaved parents to access in their own time.
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J Pain Symptom Manage · Jun 2021
Methodological reflections on the recruitment of adult child-parent dyads for end-of-life research in Germany: Experiences from the Dy@EoL study.
Although high-quality research with patients and family members is needed to improve palliative care, difficulties in recruitment are often reported. ⋯ The recruitment was more successful in inpatient than in ambulatory settings. The extension of recruitment partners was beneficial to recruit participants from ambulatory contexts. The inclusion of single participants was conducive as a great number of patients participated without their dyad partner. Sharing the obtained experiences can be helpful for future research planning.
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J Pain Symptom Manage · Jun 2021
Clinical TrialPerceived Benefits and Burdens of Participation For Caregivers of Cancer Patients in Hospice Clinical Trials: A Pilot Study.
Hospice is a service for those with a life expectancy of six months or less. Family caregivers suffer from depression and anxiety as they care for their loved one until they die. Little is known about how research participants decide to consent to participate in clinical trials in the hospice setting. ⋯ The benefits and burdens model for clinical trial participation is applicable to the caregiver experience in the hospice setting. Understanding the perceptions and dimensions of benefits and burdens to potential study participants is critical to not only the intervention design but also the tailoring of recruitment contacts and informed consent process.
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J Pain Symptom Manage · Jun 2021
Pain in Dementia: Prevalence and Association With Neuropsychiatric Behaviors.
Pain is linked to behaviors and psychological symptoms of dementia (BPSD); however, it often remains underrecognized in this population. ⋯ There is a strong need to consider the possibility of pain as a contributor to behavioral changes in aged care residents living with dementia.