Journal of pain and symptom management
-
J Pain Symptom Manage · Jun 2022
ReviewApplication of Critical Race Theory in Palliative Care Research: A Scoping Review.
Structural racism negatively impacts individuals and populations. In the medical literature, including that of palliative care, structural racism's influence on interracial differences in outcomes remains poorly examined. Examining the contribution of structural racism to outcomes is paramount to promoting equity. ⋯ Palliative care research frequently highlights racial differences in outcomes. Articles that examine racial differences often assume that differences need to be fixed but posit reasons for differences without the narratives of those most affected by them.
-
J Pain Symptom Manage · Jun 2022
Engaging African American family caregivers in developing a culturally-responsive interview guide: A multiphase process and approach.
Qualitatively eliciting historically marginalized populations' beliefs, values, and preferences is critical to capturing information that authentically characterizes their experiences and can be used to develop culturally-responsive interventions. Eliciting these rich perspectives requires researchers to have highly effective qualitative interviewing guides, which can be optimized through community engagement. ⋯ The purpose of this article is to provide a series of steps, each supported by a case example from our work with African American family caregivers, for developing an interview guide through community engagement. We conclude by highlighting how involving historically marginalized community members in these early stages of research study development can build trust, research partnerships, and acknowledge their contribution to the development of new knowledge.
-
J Pain Symptom Manage · Jun 2022
The Lived Experience of Physical Separation for Hospice Patients and Families amid COVID-19.
Many hospice patients were physically separated from family members and healthcare professionals during the early COVID-19 pandemic. ⋯ Inclusive, innovative connection strategies are needed to ensure that high-quality end-of-life care is provided to hospice patients and their family caregivers when physical presence must be limited.