Journal of pain and symptom management
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J Pain Symptom Manage · Jul 2022
Validation of 'Care Of the Dying Evaluation' (CODETM) within an international study exploring bereaved relatives' perceptions about quality of care in the last days of life.
Assessing quality of care provided during the dying phase using validated tools aids quality assurance and recognizes unmet need. ⋯ Within an international context, good evidence supports the validity and reliability of CODETM for assessing the quality of care provided in the last days of life.
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J Pain Symptom Manage · Jul 2022
Intervention Codesign in the Pediatric Cardiac Intensive Care Unit to Improve Family Meetings.
Family meetings are encouraged in the pediatric cardiac intensive care unit (CICU) with the expectation of supporting parental shared decision-making (SDM). However, they often fall short of this goal. Additionally, interprofessional team and family meetings are dominated by input from physicians, under-utilizing the skillset of the full clinical team. ⋯ A codesign of an intervention with clinicians and parents in the CICU is a feasible and resulted in an intervention with broad support among clinicians in the CICU.
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J Pain Symptom Manage · Jul 2022
ReviewThe Design of a Data Management System for a Multicenter Palliative Care Cohort Study.
Prospective cohort studies of individuals with serious illness and their family members, such as children receiving palliative care and their parents, pose challenges regarding data management. ⋯ Investigators planning future multicenter prospective cohort studies can consider attributes of the data infrastructure we describe when designing their data management system.
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J Pain Symptom Manage · Jul 2022
Identification of Distinct Symptom Profiles in Cancer Patients Using a Pre-Specified Symptom Cluster.
Pain, fatigue, sleep disturbance, and depression often co-occur in oncology patients and negatively impact quality of life (QOL). ⋯ Over 55% of patients undergoing chemotherapy had a moderate to high symptom burden associated with these four common co-occurring symptoms. Multimodal interventions are needed to decrease symptom burden and improve QOL outcomes in these patients.