Journal of pain and symptom management
-
J Pain Symptom Manage · Dec 2023
ReviewA Meta-Ethnographic Review of Paid Staff and Volunteers Working together in Palliative Care.
Volunteers in palliative care settings are an essential part of care provision for patients and those important to them. Effective collaboration between volunteers and paid staff has been regarded as an important element of successful working, however, at times failures in coordination, information sharing and tensions within teams have been highlighted. ⋯ For effective working relationships between paid staff and volunteers, proactive engagement, recognition of each other's role and contribution, mutual sharing of information, and intentional interaction between both groups is needed.
-
J Pain Symptom Manage · Dec 2023
The Duality of "Goals of Care" Language: A Qualitative Focus Group Study with Frontline Clinicians.
The phrase "goals of care" (GOC) is common in serious illness care, yet it lacks clarity and consistency. Understanding how GOC is used across healthcare contexts is an opportunity to identify and mitigate root causes of serious illness miscommunication. ⋯ Frontline palliative and critical care clinicians understand a duality in GOC, as an idealized concept and as an expeditious signal for clinical care. Our findings suggest ambiguous phrases like GOC persist because of unmet needs for better ways to discuss and address diverse and complex priorities for patients with serious illness.
-
J Pain Symptom Manage · Dec 2023
Implementing a Serious Illness Risk Prediction Model: Impact on Goals of Care Documentation.
Goals of care conversations can promote high value care for patients with serious illness, yet documented discussions infrequently occur in hospital settings. ⋯ Implementation of a goals of care initiative using a mortality prediction model significantly increased goals of care documentation especially among high-risk patients. Further study to assess strategies to increase goals of care documentation for intermediate risk patients is needed especially by nonspecialty palliative care.
-
J Pain Symptom Manage · Dec 2023
Psychosocial well-being of siblings of pediatric patients in palliative home care.
Despite the proposed high burden of siblings of children and adolescents with life-limiting conditions receiving pediatric palliative care (PPC) at home, little is known about their psychosocial well-being. ⋯ Siblings of children receiving PPC in a home care setting are at risk for a relevant impairment of their health-related quality of life. Future studies should address the potential for possible interventions specific for this population-at-risk.
-
J Pain Symptom Manage · Dec 2023
Navigating Stress in the Pediatric Intensive Care Unit Among Parents of Children with Severe Neurological Impairment.
Children with severe neurological impairment (SNI) make up nearly 50% of pediatric intensive care unit (PICU) admissions, yet little is known about their family caregiver experiences. ⋯ Parents and family caregivers of children with SNI employ various ways to navigate stress in the PICU. Themes from this study can be used to develop interventions that meet the psychosocial needs of parents and family caregivers of children with SNI during highly stressful times.