Journal of pain and symptom management
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J Pain Symptom Manage · Dec 2024
A Photo-Narrative Intervention for Children with Severe Neurological Impairment in the PICU.
Parents of children with severe neurological impairment (SNI) face barriers in the pediatric intensive care unit (PICU) to humanistic care. Photo-narratives are a promising strategy to share perspectives about well-being. This study describes the iterative refinement and lessons learned in adapting a photo-narrative intervention for children with SNI in the PICU. ⋯ Themes and lessons learned from the successful adaptation and refinement of a photo-narrative can inform the other interventions designed to humanize care.
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J Pain Symptom Manage · Dec 2024
Bereaved family quality of life varies with comorbid psychological distress and ICU-care quality.
Health-related quality of life (HRQOL) is highly endorsed, but HRQOL studies scarcely investigate the following: ICU family members; modifiable end-of-life (EOL) ICU-care factors; conjoint associations with prolonged grief disorder (PGD), posttraumatic stress disorder (PTSD), and depression; and long-term bereavement outcomes. ⋯ Bereaved family members' HRQOL was significantly associated with PGD-PTSD-depressive-symptom states and QODD classes-both modifiable through high-quality EOL ICU care.
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J Pain Symptom Manage · Dec 2024
Identifying factors associated with disparities in accessing an Integrative Oncology program.
Integrative oncology (IO) programs provide patients with evidence-based complementary medicine therapies within a supportive and palliative cancer care setting. This study retrospectively examined characteristics of patients with lung cancer predicting utilization of a freely-provided IO consultation at two medical centers in Israel. ⋯ The present study suggests that age, gender and culture-related factors (reflected by the patient's primary language) may contribute to disparities in accessing a freely-provided IO consultation, as shown in a diverse population of patients with lung cancer from two medical centers in Israel. Further research is needed to better understand the role of these programs within a diverse, equitable and inclusive setting of effective and safe integrative care of oncology patients.
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J Pain Symptom Manage · Dec 2024
Model for an International Case Sharing Program to Enhance Global Palliative Care Education.
In Thailand, the field of palliative medicine is growing but access and training remain limited. We sought to expand education of resident physicians at Chiang Mai University (CMU) in Thailand through development of an international case sharing program. ⋯ We present a sustainable, convenient, low-cost, cross-cultural palliative care case conference model that has the potential to enrich palliative care education globally.
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J Pain Symptom Manage · Dec 2024
Designing and delivering a poetry workshop for clinician well-being during the COVID-19 pandemic: A case study.
Facilitated poetry writing workshops are used in healthcare settings as a therapeutic approach to address stressful factors that negatively influence clinician well-being. However, owing to the novelty of this intervention and a tendency to combine poetry with other types of narrative-based techniques, proponents of poetic medicine are calling for harmonization across programs in the US. This would facilitate the study of poetry in medicine and the multiple facets of well-being it is said to promote. ⋯ Our workshop contained the core components of reading, writing, and reflection; however, our program was unique in its inclusion of a website and a pre-writing component. The facilitator's instruction on and fostering the use of poetic technique coupled with website interaction were key promoters of participant engagement with their peers in the processing of complex experiences and related emotions. Healthcare systems seeking to incorporate poetry into their wellness programming may build upon our findings to create flexible workshops suited to their clinician audience and program intent.