Journal of pain and symptom management
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J Pain Symptom Manage · May 2022
Pain and the Alzheimer's Disease and Related Dementia Spectrum in Community-Dwelling Older Americans: A Nationally Representative Study.
Pain is a significant concern among older adults with Alzheimer's disease and related dementias (ADRD). ⋯ CIND and dementia increased the risk of under-report and under-treatment of pain. Systematic efforts are needed to improve pain recognition and treatment among older adults with cognitive impairment, regardless of dementia diagnosis.
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J Pain Symptom Manage · May 2022
A novel scale to assess palliative care patient experience of feeling heard and understood.
Patient experience of palliative care serves as an important indicator of quality and patient-centeredness. ⋯ This novel multi-item Feeling Heard and Understood scale can be used to measure and improve ambulatory palliative care patient experience.
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J Pain Symptom Manage · May 2022
A race-conscious approach toward research on racial inequities in palliative care.
Racial inequities in palliative and end-of-life care have been well-documented for many years. This inequity is long-standing and resistant to many intervention efforts. ⋯ Public Health Critical Race Praxis (PHCRP) offers researchers new routes of inquiry to broaden the scope of research priorities in palliative care and improving racial outcomes through a novel conceptual framework and methodology. PHCRP, based off critical race theory (CRT), contains 10 principles within four foci to guide researchers toward a more race conscious approach for the generation of research questions, research processes, and development of interventions targeting racial inequities.
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J Pain Symptom Manage · May 2022
Palliative Care Services within a Pediatric Hematology-Oncology Program in a Low-Resource Setting.
Outcomes for children with cancer in sub-Saharan Africa (SAA) are dismal due to delayed diagnosis and limited access to curative therapy. When establishing a pediatric hematology-oncology (PHO) program in low-resource settings, early integration of palliative care services becomes essential. While palliative care is a human right, equitable distribution is lacking. ⋯ Palliative care is a critical component of PHO programs worldwide. Programs must leverage existing networks to ensure optimal care to children and families. We demonstrate the feasibility of integrating palliative care services within a PHO program in a low-resource setting, which could serve as a model for other countries in SSA.