Journal of pain and symptom management
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J Pain Symptom Manage · Feb 2025
Randomized Controlled Trial Multicenter StudyParent Views on Parent & Child-reported Outcomes in Pediatric Advanced Cancer: A Qualitative Study.
Research on concurrent parent and patient-reported outcomes has primarily focused on reaching agreement. However, little is known about how to interpret and address discrepancies, which are not uncommon, between both viewpoints. ⋯ gov NCT03408314.
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J Pain Symptom Manage · Dec 2024
Randomized Controlled Trial Multicenter StudyPredictors of Specialty Outpatient Palliative Care Utilization Among Persons with Serious Illness.
Outpatient Palliative Care (OPC) benefits persons living with serious illness, yet barriers exist in utilization. ⋯ Efforts to improve OPC utilization should focus on those with lower education, more functional limitations, older age, female sex, and those with less social support. Trial Registration ClinicalTrials.gov Identifier: NCT03325985.
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J Pain Symptom Manage · Dec 2024
Randomized Controlled TrialCulturally Adapted RN-MD Collaborative SICP-Based ACP: Feasibility RCT in Advanced Cancer Patients.
Cultural adaptation is essential for optimizing programs centered around autonomy, such as the Serious Illness Care Program (SICP), especially for populations valuing family-involved decision-making. ⋯ Despite not meeting the targeted completion rate, the intervention group demonstrated enhanced spiritual well-being, QOL, and ACP progress. Our findings suggest revisions to the intervention manual to improve feasibility and to progress to an efficacy-focused randomized controlled trial.
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J Pain Symptom Manage · Nov 2024
Randomized Controlled TrialTransitional Palliative Care for Family Caregivers: Outcomes from a Randomized Controlled Trial.
Patients receiving inpatient palliative care often face physical and psychological uncertainties during transitions out of the hospital. Family caregivers often take on responsibilities to ensure patient safety, quality of care, and extend palliative care principles, but often without support or training, potentially compromising their health and well-being. ⋯ Addressing rural caregivers' needs during transitions in care can enhance caregiver outcomes and improve patient quality of life.
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J Pain Symptom Manage · Sep 2024
Randomized Controlled TrialFeasibility of Weekly Integrated Palliative Care Outcome Scale (IPOS) Within a Stepped Care Model.
Patients with advanced cancer may experience symptoms and concerns that are inadequately identified by the healthcare team, leading to calls for patient-reported symptom monitoring. ⋯ In our study, there was suboptimal completion of patient-reported IPOS questionnaire. Further research is needed to improve the uptake of patient-reported outcomes in real-world clinical settings.