Journal of pain and symptom management
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J Pain Symptom Manage · Mar 2022
Factors Associated With Quality of Life in Children Receiving Pediatric Palliative Care.
Since pediatric palliative care (PPC) aims to improve the health-related quality of life (HRQoL) of children with life-limiting conditions (LLC), assessment of their HRQoL and identification of its determinants is crucial. ⋯ The HRQoL of children with LLC receiving PPC differed among underlying disease categories. Lower HRQoL was associated with more caregiver depressive symptoms. These findings suggest the needs for optimized intervention in palliative care for children with nonmalignant conditions and family-centered intervention to address caregivers' psychosocial problems.
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J Pain Symptom Manage · Mar 2022
Developing an instrument to assess the readiness for advance care planning.
In recent times, advance care planning for patients' end-of-life care preferences has attracted much attention worldwide. ⋯ The validity and reliability of the scale were generally acceptable. The RACP is an appropriate instrument to evaluate the level of readiness for ACP behaviors among people of various generations at every health stage. More studies are needed to examine the clinical utility of the RACP, both nationally and internationally.
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J Pain Symptom Manage · Mar 2022
A Comparison of Models Predicting One-Year Mortality at Time of Admission.
Hospitalization provides an opportunity to address end-of-life care (EoLC) preferences if patients at risk of death can be accurately identified while in the hospital. The modified Hospital One-Year Mortality Risk (mHOMR) uses demographic and admission data in a logistic regression algorithm to identify patients at risk of death one year from admission. ⋯ A machine learning RF model, using common demographic and utilization data available on hospital admission, identified inpatients at risk of death more effectively than logistic regression models using the same variables. Machine learning models have promise for identifying admitted patients with elevated one-year mortality risk, increasing opportunities to prompt discussion of EoLC preferences.
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J Pain Symptom Manage · Mar 2022
The Patient Dignity Inventory and Dignity-Related Distress among the Critically Ill.
Critical illness confers a significant risk of psychological distress, both during and after intensive care unit (ICU) admission. The Patient Dignity Inventory is a 25-item instrument initially designed to measure psychosocial, existential and symptom-related distress in terminally ill patients. ⋯ This study demonstrates that the inventory can be used to assess patient distress in critical care settings. Further research may elucidate the role of dignity-based interventions in treating and preventing post-intensive care psychological symptoms.
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J Pain Symptom Manage · Mar 2022
Arranging hospice care from the Emergency Department: A single center retrospective study.
Arranging hospice services from the Emergency Department (ED) can be difficult due to physician discomfort, time constraints, and the intensity of care coordination needed. We report patient and visit characteristics associated with successful transition from the ED directly to hospice. ⋯ Transitioning patients to hospice care from the ED is possible within a typical ED length of stay with assistance from a case manager/social work team.