Journal of pain and symptom management
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J Pain Symptom Manage · Dec 2019
ReviewCancer Pain in People with Intellectual Disabilities:Systematic Review and Survey of Health Care Professionals.
Owing to life expectancy improvements for people with intellectual disabilities, their risk of developing cancer is increasing. Pain is an inevitable aspect of cancerous diseases. However, as pain experience and expression can be atypical in people with intellectual disabilities, this population is vulnerable to late diagnosis of cancer and undertreatment of cancer pain. ⋯ Cancer pain in people with intellectual disabilities is a topic lacking specific and comprehensive research within scientific literature. We suggest this is due to inherent difficulties regarding the complex interplay of comorbidities and communication issues in people with intellectual disabilities.
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J Pain Symptom Manage · Dec 2019
Randomized Controlled TrialBrief English and Spanish Survey Detects Change in Response to Advance Care Planning Interventions.
The validated 82-item Advance Care Planning (ACP) Engagement Survey measures a broad range of ACP behaviors but is long. ⋯ Shorter versions of the ACP Engagement Survey were able to detect within-group and between-group changes comparable with the 82-item version and can be useful for efficiently and effectively measuring ACP engagement in research and clinical settings.
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J Pain Symptom Manage · Dec 2019
Patients' and caregivers' contested perspectives on spiritual care for those affected by advanced illnesses: a qualitative descriptive study.
Spiritual care refers to practices and rituals addressing spiritual/religious concerns. It supports coping with loss and finding hope, meaning, and peace. Although integral to palliative care, its implementation is challenging. ⋯ Although many patients and caregivers did not resonate with the term "spiritual care," all described how the hospital's hospitality could affirm their values and strengthen coping. The phrase "spiritual care and hospitality" may optimally articulate and guide care in similar, pluralist inpatient palliative care contexts, recognizing that such care encompasses an interplay of generalist and specialist pastoral care staff and organizational and environmental qualities.
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J Pain Symptom Manage · Dec 2019
Randomized Controlled TrialPhysical activity for symptom management in women with metastatic breast cancer: a randomised feasibility trial.
Physical activity for women with early-stage breast cancer is well recognized for managing cancer-related symptoms and improving quality of life. While typically excluded from interventions, women with metastatic breast cancer may also benefit from physical activity. ⋯ A partially supervised home-based physical activity program for women with metastatic breast cancer is feasible and safe. The dose of the resistance training component was well tolerated and achievable in this population. In contrast, adherence and compliance to the walking program were poor. Preliminary data suggest a physical activity program, comprising predominantly resistance training, may lead to improvements in physical capacity and may help women to live well with their disease.
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J Pain Symptom Manage · Dec 2019
A video decision aid improves informed decision-making in patients with advanced cancer considering palliative radiation therapy.
Advanced cancer patients have unrecognized gaps in their understanding about palliative radiation therapy (PRT). ⋯ Among hospitalized patients with advanced cancer, a video decision aid reduced decisional uncertainty, improved knowledge of PRT, increased readiness for PRT, and was well received by patient viewers.