Palliative medicine
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Palliative medicine · Mar 2024
The perceptions of palliative care medical practitioners towards oral health: A descriptive qualitative study.
Oral health problems are common, but often overlooked, among people receiving palliative care. ⋯ To improve the provision of oral health care in this population, this study highlighted the need for oral health training across the multidisciplinary team, standardised screening assessments and referrals, a collective responsibility across the board and exploring the potential for teledentistry to support oral health care provision.
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Palliative medicine · Mar 2024
'People don't realise how much their past experiences affect them in adulthood': A qualitative study of adult siblings' experiences of growing-up with a sister/brother with a childhood life-limiting condition and their perceived support needs.
There is a lack of research about the experiences and impact of having a sibling with a life-limiting condition. Studies focus on the sibling experience during childhood but the experience and impact during adulthood is unknown despite the increased life-expectancy of children with life-limiting conditions. ⋯ Having a sister/brother with a childhood life-limiting condition appeared to have a significant and ongoing impact on adult siblings but their support needs, particularly for psychotherapy and peer support, are overlooked. The findings highlight the importance of ensuring siblings are included in family assessments and that family-based interventions are developed to promote sibling-parent relationships.
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Palliative medicine · Mar 2024
ReviewImproving family grief outcomes: A scoping review of family-based interventions before and after the death of a child.
Experiencing the illness and death of a child is a traumatic experience for the parents and the child's siblings. However, knowledge regarding effective grief interventions targeting the whole family is limited, including how to integrate age-appropriate support for siblings. ⋯ There is great need for research to improve bereavement outcomes for the entire family and to potentially integrate this in pediatric palliative care.