International journal of geriatric psychiatry
-
Int J Geriatr Psychiatry · Apr 2020
How do Admiral Nurses and care home staff help people living with dementia and their family carers prepare for end-of-life?
To explore current practice and the role of UK care homes and Admiral Nurses in helping people living with dementia and their family carers prepare for end-of-life. ⋯ Our survey of care homes and Admiral Nurses, combined with findings from our previous survey of UK memory services, increases our understanding of how services help people with dementia and family carers prepare for end-of-life. We found fragmentation across the service system, lack of continuity, and tensions regarding when these conversations should be initiated and by whom.