Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses
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Chronic sorrow, a progressive, persistent, and endless feeling of grief, is seen in parents of children with chronic diseases. This study aimed to investigate chronic sorrow in mothers of children with cancer in selected hospitals in Tehran, Iran. It also sought to clarify the relationships between chronic sorrow and some demographic characteristics. ⋯ The relationships between most demographic characteristics and scores on the Kendall Chronic Sorrow Questionnaire were not significant. Chronic sorrow is a concept experienced by families of children with cancer. The health care provider's knowledge about this concept and its components can facilitate the development of better support and treatment programs and lead to improved quality of life for children and their families.
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J Pediatr Oncol Nurs · Sep 2015
Evaluation of Physician and Nurse Dyad Training Procedures to Deliver a Palliative and End-of-Life Communication Intervention to Parents of Children with a Brain Tumor.
When a child's prognosis is poor, physicians and nurses (MDs/RNs) often struggle with initiating discussions about palliative and end-of-life care (PC/EOL) early in the course of illness trajectory. We describe evaluation of training procedures used to prepare MD/RN dyads to deliver an intervention entitled: Communication Plan: Early Through End of Life (COMPLETE) intervention. Our training was delivered to 5 pediatric neuro-oncologists and 8 pediatric nurses by a team of expert consultants (i.e., in medical ethics, communication, and PC/EOL) and parent advisors. ⋯ Lessons learned and challenges related to our training procedures will be described. Overall, the MDs and RNs reported that our PC/EOL communication-training procedures were helpful and useful. Future investigators should carefully plan training procedures for PC/EOL communication interventions.
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J Pediatr Oncol Nurs · Sep 2015
The Effect of Perceived Parental Rearing Behaviors on Health-Related Quality of Life in Adolescents with Leukemia.
As the prognosis of childhood leukemia has dramatically improved, clinical interest has been growing in health-related quality of life in adolescents with leukemia. An important factor in adolescent quality of life is their perception of parental rearing behavior. The aim of this study was to explore how perceived parental rearing behaviors related to the quality of life of adolescents with leukemia. ⋯ We found that paternal rejection/punishment behavior was significantly correlated with maternal rejection/punishment behavior (P < .00); paternal and maternal control/overprotection behavior were also significantly correlated with each other (P < .00). We found that perceived parental warmth has a moderate effect on the quality of life of adolescents, that quality of life was related to both paternal and maternal rearing behaviors, and that the mother's and father's rearing behaviors were correlated with each other. To improve the quality of life of adolescents with leukemia, the patient's care plan should aim to enhance positive parental rearing behaviors in both parents.