Journal for healthcare quality : official publication of the National Association for Healthcare Quality
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The need for measures of the quality of healthcare provided to children and adolescents is well documented. However, children have been underrepresented in national healthcare quality measurement and reporting efforts. The Pediatric Data Quality Systems (Pedi-QS) Collaborative is addressing this gap. ⋯ The framework and measure set development process are described. Lessons learned from applying the process are summarized, and future directions are suggested. Voluntary collaborative efforts are vital for advancing children's measures, and national support and funding are also needed.
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This study highlighted the tensions that physicians face when communicating the death of a child to parents. Ten pediatric physicians participated in interviews in which they were asked to provide specific details about end-of-life discussions they have had with families in pediatric emergency rooms. From these findings, it is evident that physicians are required to balance multiple external and internal tensions embedded in these difficult conversations.