Journal of evaluation in clinical practice
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The shift of treatment of paediatric cancer patients to include more care at home puts a lot of pressure on health care professionals (HCPs) to prepare and train parents on safe and correct drug handling at home. Parents must take in and understand the information presented to them while coping with their own fear related to their child's cancer diagnosis. In Sweden, parents are expected to handle and manipulate oral anticancer drugs (OADs) in the home setting. There is however a lack of a standardized method to inform and educate parents on how to handle OADs in a correct way at home. ⋯ This educational intervention study shows promising results for the method used by HCPs to inform and educate parents on complicated topics such as handling OADs at home.
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Comparative Study
A Comparison of Patient Self-Reported Fatigue in the FRAIL Scale With a Validated Fatigue Measure.
The FRAIL scale is a self-administered tool used to screen for frailty in clinical, community and long-term nursing settings. Patient's self-reporting of fatigue in the FRAIL scale may raise concerns of subjectivity and accuracy in frailty assessment. ⋯ Patient-reported fatigue largely reflects validated measure of fatigue. Physicians should therefore be encouraged to use the FRAIL scale to assess frailty.
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This study is a case study that aims to evaluate community-based mental health services from the perspective of health providers and service recipients through SWOT analysis. ⋯ Community-based mental health services contain strengths, weaknesses, opportunities and threats according to the views of both health providers and service recipients, and the views of the groups overlap with each other within the supply-demand mechanism. It can be said that the effectiveness of community-based mental health services will increase by preventing threats by improving weaknesses and increasing the visibility of opportunities by recognizing strengths.
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Schizophrenia is a complex mental health disorder that not only affects the individual diagnosed but also has profound implications for their families and caregivers. This paper aims to shed light on the emotional, social and practical challenges faced by caregivers, as well as the coping mechanisms they employ to navigate the complexities of caregiving. ⋯ Caregivers often experience a wide range of emotions, from love and empathy to frustration and helplessness, as they navigate the challenges of supporting their loved ones with schizophrenia. Additionally, caregivers may face stigma, social isolation and financial strain, further complicating their caregiving journey.
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The development of clinical practice guidelines (CPG) has evolved into a rigorous and complex process. There is a need for training of CPG developers including methodologists, panel members and patient representatives. This study explored the educational needs and experiences of CPG developers, with specific attention to the patient perspective and economic considerations. ⋯ This study underscores the importance of tailored CPG development training programmes addressing the specific competencies required for the different roles in CPG development. Thereby, recognising a holistic approach encompassing both content- and process-related aspects. Addressing economic considerations and the patient perspective in training will contribute to CPGs that support a patient-centred and sustainable healthcare system.