Orphanet J Rare Dis
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Orphanet J Rare Dis · Jan 2020
Multicenter StudyManagement and current status of spinal muscular atrophy: a retrospective multicentre claims database analysis.
The interest in patient demographics and disease management has increased in the past years due to their utility in developing measures that allow healthcare providers to reflect disease complexity. ⋯ Patients exhibited similar characteristics to prior European studies. Multiple admissions in younger patients, mostly due to respiratory issues, have a central role in increasing medical costs of SMA. Equally, the higher risk of patients and increased number of multimorbidity groups translate in an elevated number of admissions in health centres and ER, deriving in higher expenses.