International journal of palliative nursing
-
To explore the lived experience of caring and care planning for a child with a life-limiting condition (LLC). ⋯ The findings are limited by the sample characteristics, but they provide insight for current policy and practice initiatives. The key worker needs to be mindful of historical care arrangements and be prepared to step into the family 'team' arrangements.
-
Few ethnic minorities access specialist palliative care (SPC) services when caring for a dying relative at home. ⋯ There is a need for health professionals to reach out to this population to increase awareness of and trust in the services that are available to support care at the end of life. However, an unwillingness to accept assistance may persist in some cases.