BMJ supportive & palliative care
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BMJ Support Palliat Care · Apr 2015
OA41 How can we support people living with death, dying, loss and care using animation? social workers reflect on the compassionate communities 'let's talk' films.
Milford Care Centre's Compassionate Communities Project has developed a series of animated films - The 'Let's Talk' Series. These films are used by the project to encourage people to have think about having difficult conversations about illness and death. The films are available on the project website, via You Tube and are shown during Café Conversations as part of the Compassionate Communities Project. More recently, members of the Specialist Palliative Care Social Work department have been using the films during their direct work with patients and their families. ⋯ The films are a very useful addition to the social work toolbox. Guidelines for their use in practice will be presented.
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BMJ Support Palliat Care · Apr 2015
OA58 Community capacity development for enhanced hospice palliative care: exploring the value of community engagement.
Over time, palliative care has become "professionalised", placing a burden on health care systems to manage the suffering of individuals and families with advancing, life-limiting illness. The need to develop resources, infrastructure and policy to enhance the capacity for communities to facilitate and support individuals and families can add value to communities, enrich hospice-palliative care and reduce health care system burden. ⋯ Results from the first study reveal significant barriers to a community planning their hospice palliative care needs, such as: a lack of provincial guidelines or funds; unforeseen workload; community expectations for a hospice building versus improved care; and an overall fear of failure. Key factors supporting their planning were: improved community awareness; putting hospice palliative 'on the map' at a provincial level; substantial donations for new services etc. Although our second, follow study to determine more concrete outcomes to community leadership and collaboration with health care providers are unknown, we imagine results will speak to the need for specific and tangible resources, infrastructure and specific policy direction.
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BMJ Support Palliat Care · Apr 2015
OA1 There's plenty of talk about advance care planning but should women be listening?
It is well established that populations worldwide are ageing. It is also well known that women will continue to live longer than men. Indeed, the social gerontology literature describes 'deep old age' as being predominantly female. However, little research exists about the gendered implications of palliative care. ⋯ This study, one of the first to adopt and explicitly feminist approach to ACP, suggests attitudes towards ACP are highly gendered, while women are often caregivers for others at the end of life, their own choices are more likely to be circumscribed by living alone at the end of life or being resident in aged residential care.
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BMJ Support Palliat Care · Apr 2015
OA59 Developing an innovative model of palliative care in the community in brazil.
Despite a National Policy on Pain and Palliative Care (working since 2002) and the Family Health Strategy (primary care), Brazil does not have a strategy to integrate palliative care in primary care. The Atlas of Palliative Care in Latino America (ALCP-2013) did not find any team working with this mode: a primary care teach working. ⋯ This project seeks to provide a proposal for palliative care offered through primary care in a public health service which does not exist in Brazil.
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BMJ Support Palliat Care · Apr 2015
OA32 Let's talk about - all ireland survey of palliative care experiences.
: "During Phase 1 of the Let's Talk About patient experience survey, 367 responses were submitted by people who use or care (or cared) for someone with a serious or progressive life-limiting condition from across the Republic of Ireland and Northern Ireland. The overall purpose of the Let's Talk About initiative is to gain a better understanding the issues that matter most to individuals so that the design and delivery of services and supports can be improved and tailored accordingly. The method collects individual narratives about a high impact good or bad experience of palliative care services which can be accessed at a micro level combined with a meta-analysis of a large quantity of qualitative information. ⋯ This is a novel approach to identifying the lived experience of users in receipt of palliative care which directs focus to the vital aspects of psychosocial wellbeing within the palliative care experience. The results have informed initial strategic recommendations aimed at a variety of key stakeholders including policy makers and commissioners, palliative care providers and agencies with a palliative care interest. Phase II of the survey will complete May 2015 www.letstalk-about.org" Report to reference: Let's Talk About Survey Report: Phase 1 http://aiihpc.org/policy-practice/141/phase-i-report/.