Dementia (London, England)
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The aim of this study was to explore family caregivers' experiences with palliative care for a close family member with severe dementia in long-term care facilities. ⋯ The family caregivers experienced ongoing responsibility for their close family members due to painful experiences with the poor quality of the palliative care provided. When their expectations regarding the quality of care were not met, the palliative care that was offered increased their feeling of guilt in an already high-pressure situation characterized by mistrust.