Articles: palliative-care.
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An evaluation was made of relatives' experiences of the care of the patient and the treatment of themselves at a geriatric ward where elderly patients dying of cancer were nursed. A questionnaire was sent to 100 relatives after they had agreed on telephone to participate. 86 relatives answered the questions. The results shows that the majority of the relatives were satisfied with the care of the patient and the treatment of themselves as relatives. ⋯ They also need support and invitation to get the courage to ask questions and to participate in the care of their dying next-of-kin. We need deepen our knowledge of what kind of information the relatives demands and what information needs to be repeated. Evaluations of routines to make contact easier between patients, their relatives and hospital staff should be done continuously.
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Multicenter Study
Family members' care expectations, care perceptions, and satisfaction with advanced cancer care: results of a multi-site pilot study.
Psychometric properties of assessment tools designed for use with English-speaking family members of advanced cancer patients in different care settings and different geographic locations were evaluated in this study. The robustness of the theoretical framework guiding the study and the factors identified with care satisfaction were also tested. Seventy-two family members drawn equally from medical hospital units, palliative care units, and home care programs in Alberta, Saskatchewan, and Manitoba participated. ⋯ Family members of patients who had been diagnosed for longer than two years had more positive perceptions of palliative care than did family members of patients diagnosed for less than two years (p = 0.05). Older family members reported better family functioning than younger family members (p < 0.001). Spouses reported less discrepancy between care expectations and perceptions than did other relatives (p < 0.05).
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Palliative medicine · Jan 1997
Hospice and palliative care in the UK 1994-5, including a summary of trends 1990-5.
A survey of hospice and specialist palliative care services in the UK in the year 1994-5 was undertaken, enquiring about inpatient, home care and day care services. Over 500 questionnaires were sent out in June 1995 and replies were analysed by the Hospice Information Service. ⋯ The response rates to various parts of the questionnaire are tabulated and national estimates are made of the numbers of patients receiving palliative care from specialist providers. The survey is one in a series of annual surveys and the development of specialist palliative care services over the last five years is discussed.