• J Pain Symptom Manage · Mar 2021

    "Pain is Subjective": A Mixed-Method Study of Provider Attitudes and Practices Regarding Pain Management in Sickle Cell Disease across Three Countries.

    • Kearsley A Stewart, Monika Parshad-Asnani, Ambroise Wonkam, John Bollinger, Valentina Ngo Bitoungui, Edmond Wonkam-Tingang, Jill Powell, Kathia Desronvil, Kathryn R K Benson, Abby Clark, Madelaine Katz, Bianca Martin, Carolyn Peterseim, Christina Williams, Nana Young, Nirmish Shah, Paula Tanabe, Michael Babyak, and Charmaine D M Royal.
    • Duke Global Health Institute, Duke University, Durham, North Carolina, USA. Electronic address: k.stewart@duke.edu.
    • J Pain Symptom Manage. 2021 Mar 1; 61 (3): 474487474-487.

    ContextSickle cell disease (SCD), an autosomal recessive blood disorder, affects millions of people worldwide. Approximately 80% of all cases are located in Africa.ObjectivesThis cross-national, interdisciplinary, collaborative study investigated provider attitudes about, and practices for, managing (assessing and treating) SCD pain.MethodsWe conducted 111 quantitative surveys and 52 semistructured interviews with health-care providers caring for adults and/or children with SCD in Cameroon, Jamaica, and the U.S.ResultsApplying Haywood's scale for assessing SCD provider attitudes, the Jamaica site scored lower on "Negative Attitudes" than the Cameroonian and U.S. sites (P = 0.03 and <0.001, respectively). Providers at the U.S. site scored lower on "Positive Attitudes" than other sites (P < 0.001). "Red Flag" scores at the Cameroon sites were lower than at other sites (P < 0.001). Qualitative results across all three sites describe the current practices for SCD pain management, as well as the challenges surrounding management for health providers, including pain subjectivity, patient-provider and parent-provider relationships, resource availability, perceptions of drug-seeking behavior, and adherence. Providers also spontaneously offered solutions to reported challenges.ConclusionOverall, findings reveal that SCD provider attitudes toward their patients differed across sites, yet at all three sites, treating SCD pain is multidimensional.Copyright © 2020 The Authors. Published by Elsevier Inc. All rights reserved.

      Pubmed     Free full text   Copy Citation     Plaintext  

      Add institutional full text...

    Notes

     
    Knowledge, pearl, summary or comment to share?
    300 characters remaining
    help        
    You can also include formatting, links, images and footnotes in your notes
    • Simple formatting can be added to notes, such as *italics*, _underline_ or **bold**.
    • Superscript can be denoted by <sup>text</sup> and subscript <sub>text</sub>.
    • Numbered or bulleted lists can be created using either numbered lines 1. 2. 3., hyphens - or asterisks *.
    • Links can be included with: [my link to pubmed](http://pubmed.com)
    • Images can be included with: ![alt text](https://bestmedicaljournal.com/study_graph.jpg "Image Title Text")
    • For footnotes use [^1](This is a footnote.) inline.
    • Or use an inline reference [^1] to refer to a longer footnote elseweher in the document [^1]: This is a long footnote..

    hide…