• Lauren Jodi Van Scoy, Michael J Green, Pamela D Witt, Cindy Bramble, Christopher Richardson, Irene Putzig, Olubukola Toyobo, Emily Wasserman, Vernon M Chinchilli, Amy Tucci, and Benjamin H Levi.
• Department of Medicine, Penn State College of Medicine, Hershey, PA, USA. lvanscoy@pennstatehealth.psu.edu.
• J Gen Intern Med. 2021 Mar 1; 36 (3): 705712705-712.

BackgroundAfrican Americans have low engagement in advance care planning (ACP). This has been attributed to healthcare distrust and skepticism about ACP. A better understanding of these attitudes is needed to address health disparities related to end-of-life care.ObjectiveTo explore the ACP-related values and beliefs of diverse African American communities across the USA and then the perceived value of an inexpensive end-of-life conversational game.DesignProspective, convergent, mixed methods cohort study involving fifteen underserved, African American communities across the USA.ParticipantsOf the 428 who attended events at purposively sampled sites, 90% consented to the research; 37% participated in one of 15 focus groups (n = 141).InterventionAn end-of-life conversation game, played in groups of 4-6.Main MeasuresThe validated, 7-item ACP values and beliefs questionnaire (scaled 7 = least skeptical, 49 = most skeptical) was administered pre-game. Post-game focus groups explored perceptions about ACP and the intervention.Key ResultsParticipants had positive attitudes (low skepticism) about ACP with a median score of 12.00 (7.00, 20.00). Values and beliefs did not significantly differ by geographical region; however, rural areas were observed to be slightly more skeptical than urban areas (median score 14.00 vs. 11.00, p = 0.002). Themes from focus groups converged with survey data showing participants valued the ACP process and consider further engagement in ACP to be worthwhile. Subthemes emphasized the need for and value of ACP.ConclusionsSkepticism about ACP may contribute to low rates of ACP engagement in underserved African American communities. The positive attitudes uncovered in our study either negate previous findings or suggest reduced skepticism.Trial RegistrationThis study has been registered at clinicaltrials.gov ( NCT03456921 ).

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