• Palliative medicine · Dec 2021

    Palliative care integration for patients with advanced chronic obstructive pulmonary disease (COPD): Identifying essential components using participatory action research.

    • Tanja Fusi-Schmidhauser, Katherine Froggatt, and Nancy Preston.
    • Palliative and Supportive Care Clinic, Oncology Institute of Southern Switzerland and Ente Ospedaliero Cantonale, Lugano, Switzerland.
    • Palliat Med. 2021 Dec 1; 35 (10): 1933-1940.

    BackgroundChronic obstructive pulmonary disease (COPD) is a life-limiting condition with palliative care needs. Despite increasing awareness about the role palliative care can play in care provision for patients with advanced COPD, integration in standard care remains underdeveloped. The unpredictability of the disease progression and misconceptions about palliative care being equivalent to end-of-life care often prevent a timely integrated approach in advanced COPD.AimTo identify practices designed to increase integration of palliative care in the management of patients with advanced COPD in a respiratory service in Southern Switzerland.DesignA participatory action research approach was chosen and key stakeholders were involved to develop new knowledge and practices, supported by a Theory of Change framework. Data from each cycle and retrospective analysis at the end of the whole research were analysed using thematic analysis.Setting/ParticipantsFive action research cycles with seven healthcare professionals working in palliative or respiratory care settings were conducted.ResultsThree elements of integrated palliative care in advanced COPD were identified: multidimensional assessment, healthcare professionals' education and interdisciplinary team meetings, which are the pillars of a new integrated palliative care model for patients with advanced COPD.ConclusionsThe new integrated palliative care model in advanced COPD includes essential elements with a focus on patients, healthcare professionals and care delivery. Further research on testing this model in clinical practice, service development, implementation processes and possible outcomes, including evaluation of the financial impact of integrated palliative care is necessary to foster this care approach across all possible settings.

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