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- Hiroshi Gotanda, Teryl K Nuckols, Marie Lauzon, and Yusuke Tsugawa.
- Division of General Internal Medicine, Cedars-Sinai Medical Center, Los Angeles, CA, USA. Hiroshi.Gotanda@cshs.org.
- J Gen Intern Med. 2022 Oct 1; 37 (13): 325132573251-3257.
BackgroundWhile advanced care planning (ACP) is recommended in dementia and cancer care, there are unique challenges in ACP for individuals with dementia, such as the insidious onset and progression of cognitive impairment, potentially leading to high-intensity care at the end of life (EOL) for this population.ObjectiveTo compare ACP completion and receipt of high-intensity care at the EOL between decedents with dementia versus cancer.DesignRetrospective longitudinal cohort study.ParticipantsParticipants of the U.S. Health and Retirement Study who died between 2000 and 2014 with dementia (n = 2099) and cancer (n = 1137).Main MeasuresCompletion of three types of ACP (living will, durable power of attorney for healthcare [DPOAH], discussions of preferences for EOL care) and three measures of EOL care intensity (in-hospital death, intensive care unit [ICU] care in the last 2 years of life, life support use in the last 2 years of life).Key ResultsUse of living will was lower in dementia than in cancer (adjusted proportion, 49.9% vs. 56.9%; difference, - 7.0 percentage points [pp, 95% CI, - 13.3 to - 0.7]; p = 0.03). Use of DPOAH was similar between the two groups, but a lower proportion of decedents with dementia had discussed preferences compared to decedents with cancer (53.0% vs. 68.1%; - 15.1 pp [95% CI, - 19.3 to - 10.9]; p < 0.001). In-hospital death was higher in dementia than in cancer (29.5% vs. 19.8%; + 9.7 pp [95% CI, + 5.9 to + 13.5]; p < 0.001), although use of ICU care was lower (20.9% vs. 26.1%; - 5.2 pp [95% CI, - 9.8 to - 0.7]; p = 0.03). Use of life support was similar between the two groups.ConclusionsIndividuals with dementia complete ACP less frequently and might be receiving higher-intensity EOL care than those with cancer. Interventions targeting individuals with dementia may be necessary to further improve EOL care for this population.© 2021. The Author(s) under exclusive licence to Society of General Internal Medicine.
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