• J Pain Symptom Manage · Jul 2022

    COVID-19: impact on pediatric palliative care.

    • Hannah May Scott, Lucy Coombes, Debbie Braybrook, Anna Roach, Daney Harðardóttir, Katherine Bristowe, Clare Ellis-Smith, Irene Higginson, Wei Gao, Myra Bluebond-Langner, Bobbie Farsides, Fliss Em Murtagh, Lorna K Fraser, and Richard Harding.
    • Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute (H.M.S, D.B., D.H., K.B., C.ES., I.H., W.G., R.H.), King's College London, London, UK. Electronic address: hannah.m.scott@kcl.ac.uk.
    • J Pain Symptom Manage. 2022 Jul 1; 64 (1): e1e5e1-e5.

    ContextChildren and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations.ObjectivesTo explore the impact of the COVID-19 pandemic and lockdowns on this population.MethodsSub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. One hundred and six United Kingdom-wide purposively-sampled Children and young people with life-limiting or life-threatening conditions, parent/carers, siblings, health professionals, and commissioners.ResultsCOVID-19 was raised by participants in 12/44 interviews conducted after the United Kingdom's first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress.ConclusionContinued delivery of child- and family-centered palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring cordination for families facing multiagency delays.Copyright © 2022 The Authors. Published by Elsevier Inc. All rights reserved.

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