• Anthony Kiwanuka, Eddy Walakira, and David Kaawa-Mafigiri.
• Makerere University College of Humanities and Social Sciences, Department of Social Work and Social Administration.
• Afr Health Sci. 2021 Dec 1; 21 (4): 161516201615-1620.

AbstractThe issue of HIV and AIDS and people living with HIV and AIDS is very sensitive which needs great attention. The population of infected individuals seems not to seek help and health services due to their illness. The barriers which prevent this population experience the meaning of social construction of their illness. The main objective of this study is to understand the day-to-day lives and the ways PLWHA deals with their lives. Qualitative method and participatory action research were used to gather information. The study found out that PLWHA have much to fight for in the complex and frightening areas of HIV research and treatment. Though there have been lacking scientific skills, all PLWHA can bring unique experiences and perspectives to an open discussion. The study concluded that facing the challenges of working with HIV and AIDS -individuals; consider the participatory research approach because it can reach out to individuals, groups and organizations. It was recommended that the ultimate goals of AIDS treatment and research activism are to accelerate scientific research knowledge that contributes towards cure, and to win an early widespread access to treatment for everyone infected with HIV. Developing a well-designed research can help PLWHA learn how to ask themselves different questions and ask if the medical and research establishments will address their concerns.© 2021 Kiwanuka A et al.

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