• J Am Med Dir Assoc · Jan 2010

    Home care in the last year of life: family member perceptions of unmet need associated with last place of care.

    • Aman Nanda, Meg Bourbonniere, Terri Wetle, and Joan Teno.
    • Division of Geriatrics, Rhode Island Hospital, Brown Medical School, 593 Eddy Street, Providence, RI 02903, USA. Aman_Nanda@Brown.edu
    • J Am Med Dir Assoc. 2010 Jan 1;11(1):21-5.

    ObjectiveTo examine the association of family members' perception about the adequacy of home health services at the last place of care before death.DesignRetrospective cross-sectional study. Mortality follow-back survey by telephone interview.SettingHome health services.ParticipantsBereaved family members or knowledgeable informants of deceased persons in 22 states.MeasurementsProxy perception of need of home health care during the last 12 months of decedent's life, whether the amount of care received was enough, and last place of care (ie, where the person spent at least 48 hours nearest to the time of death).ResultsOf the 1578 interviews, 622 informants reported that decedents needed home health care in the last year of life. Among decedents needing home health care, 144 informants reported that the home health services provided did not meet their needs. After adjusting for age, gender, insurance, education, race, cause of death, functional status, and place of residence, decedents reported as not receiving enough home health care were 1.8 (95% CI 1.1-2.9) times more likely to die in a nursing home.ConclusionThe perception that home health services before death did not meet the decedent's needs may contribute to greater nursing home use.Copyright (c) 2010 American Medical Directors Association. Published by Elsevier Inc. All rights reserved.

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