• Yan-Qiu Liu, Yu-Lin Guo, Jia Xu, Wen-Jing Geng, Zhen-Zhen Li, Ming Jia, Yu-Dan Liu, and Hua Zhao.
• College of Nursing, Shanxi University of Chinese Medicine, Jinzhong, Shanxi, People's Republic of China.
• Patient Prefer Adher. 2023 Jan 1; 17: 249257249-257.

PurposeTo probe into the needs and barriers underlying patients' participation in shared decision-making related to rehabilitation nursing for hemophilic arthropathy.Patients And MethodsThe phenomenological research approach was adopted to conduct a series of semi-structured, in-depth interviews with 15 patients with hemophilic arthropathy undergoing rehabilitative treatments, 10 caregivers, and 7 healthcare providers from a hemophilia treatment center in Shanxi province, China. Colaizzi's seven-step method of data analysis was applied to organize, analyze, and extract the themes from the interview materials.ResultsThree main themes emerged from the analysis: the status quo of the healthcare system (insufficient decision support systems and mismatch between healthcare providers' and patients' resources), circumstances of provider-patient interactions (lack of information exchange and unbalanced power structure between healthcare providers and patients), and patient-related factors influencing participation in decision-making (lack of self-efficacy, personal characteristics, family and social decision support, and attitude toward participation in decision-making).ConclusionParticipation in rehabilitation decision-making among patients with hemophilic arthropathy is affected by multiple barriers. Healthcare professionals should improve their understanding of shared decision-making, offer patients active guidance on participating in the decision-making process, prioritize their affective needs, and formulate professional and effective solutions to support shared decision-making as early as possible.© 2023 Liu et al.

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