• Patient Prefer Adher · Jan 2023

    A Survey of Patient Experience in CML: American and Canadian Perspectives.

    • Christopher Hillis, Kathryn E Flynn, Erinn Hoag Goldman, Tracy S Moreira-Lucas, Josie Visentini, Stephanie Dorman, Rachel Ballinger, Hilary F Byrnes, Andrea De Palma, Valentin Barbier, Lisa Machado, and Ehab Atallah.
    • Department of Oncology, McMaster University, Hamilton, Canada.
    • Patient Prefer Adher. 2023 Jan 1; 17: 331347331-347.

    PurposeWith treatment, chronic myeloid leukemia (CML) has a favorable prognosis, however, individuals with CML experience impairment to their quality of life (QoL). The aim of this study was to examine the perspectives and experiences of individuals with CML and to understand their challenges communicating with their CML physician.Patients And MethodsAn online survey in adults with CML (n=100) in the US and Canada assessed QoL, patient-provider relationships, treatment satisfaction, and understanding of CML and treatment goals via the MD Anderson Symptom Inventory, the Cancer Therapy Satisfaction Questionnaire and de novo survey questions. Participants were recruited via an external patient recruiter and CML Patient Groups.ResultsMany participants reported hardships due to CML and its treatment. The main impacts were on the ability to work (21%), engage in personal activities (e.g., hobbies, 28%), and to enjoy sexual relations (median=2.00, IQR=8.50). A substantial proportion (21-39%) wished to discuss additional topics with their providers (e.g., management of CML and/or its impacts). While participants reported satisfaction with therapy overall (median=85.71, IQR=17.86), they indicated low to moderate treatment satisfaction with specific components, including concerns regarding side effects (median=43.75, IQR=43.75). Participants generally had a good understanding of CML (97%) and its treatment goals (92%).ConclusionThese findings advance our understanding of issues that need improvement to support QoL for individuals living with CML. Future work is needed to improve patient-provider relationships, address treatment-related side effects, and provide clinical information that is easier for patients to understand.© 2023 Hillis et al.

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